Payton was a great patient as usual! She was asleep for a lot of the appointment this time, it was during her naptime. She got a little fussy because she kept trying to go to sleep and the blood pressure cuff kept waking her up, so we swaddled her and she passed right out! Everything is going very well, the doctor said that he can already see a difference in the hemangiomas! I've only noticed a difference in the one on the top of her head; it's started to turn a darker color, almost bluish purple in some spots. I haven't really noticed a difference in the one by her eye (the one we really want to see a difference in), but when he felt it, he said it definitely felt softer, which he said is a very good sign. Apparently they change colors and get softer before they start to shrink, so he was pleased with the progress so far. He decided to double her dose, but we don't have to go back for two weeks, which is nice. It seemed like a big jump, but he said that if necessary we can double it again, so she isn't at the maximum amount... and if this works well enough, then she can stay at this dose. He's going to reevaluate her in two weeks, and we'll decide what to do at that point. She was pretty tired all day yesterday, but we think her body was just adjusting to the new dose... It's normal for her to be a little more tired, since we're lowering her blood pressure. Don't worry though, today she was back to her normal self! So we're going back July 1st, hopefully there will be an even bigger difference by then!
Doting daddy
Naptime!I'll tell you about the rest of my weekend in my next blog! :)



I love pictures of dads and their children...so naturally this one of Kyle brought tears to my eyes (a sentimental one I am, ask your mom).
ReplyDeleteI am so glad to hear the hemangiomas are responding so quickly. That's great! Also good to hear Payton gets a little doctor break until the next round. What a super little patient she is!
Enjoy your girl time with Mom and Chels. Are they figthing over that baby or what?!
Love you Jen!
Great news on the progress made in such a short time. Love the pictures and can't wait to read about your weekend with grandma C and auntie Chelsea. Love you guys GG &GGP Book
ReplyDeleteSo happy the Dr could see some improvements. Pray it keeps working and she can get back to a normal life, for you and Kyle too. We love you and will keep praying. Love Nana C
ReplyDeleteI am so grateful for the things modern medicine can do, and even more grateful that Payton is taking it as well as she is.
ReplyDeleteShe's on her way!