This morning we went to Doernbecher to get Payton started on the propranolol. We were nervous, but it went very well! She did so great, she is such a trooper. It was kind of confusing at first, at our last appointment they forgot to give us the prescription, and I didn't even think about it, I just thought they would have it there... whoops! :) Luckily there was a pharmacy just down the hall, and they had it in stock. So we got it really quick, and her doctor came in to explain how we give it and gave her the first dose. It's an oral solution, so we just give it to her with a syringe. They took her blood pressure before she got it (with the tiniest blood pressure cuff I have ever seen!) and then took it every 15 minutes for an hour after. She wasn't a big fan of the blood pressure cuff at first, she squirmed a lot when it took the reading, but she eventually got used to it. Basically we have to give it to her 3 times a day, always with a bottle. They started her off on a really tiny dose, and we're going back next Thursday to do it again, this time with a higher dose. He said her dose may get adjusted a couple more times, so we'll see how it goes. As far as her blood pressure, it was fine the whole time! I had her laying on the bed and I brought a couple toys, and she was kicking around and flailing her arms almost the whole time. She was so active that her blood pressure actually went up! :)
Thank you to everyone who has been praying and thinking about Payton, despite these little bumps in the road she is doing so great. She LOVES to chew on her hands (to the point she's gagged herself!) and anything that touches her hands she tries to put in her mouth as well. She absolutely loves her ladybug room, when I'm changing her diaper she sits there and smiles at the wallpaper, and when I put her in her crib for a nap she giggles at her ladybug mobile. She is so much more smiley, and loves to hear her own voice, even though she scares herself sometimes! She's starting to reach out and touch things on her own if we place something in her lap, it's really fun to watch her start exploring with her hands... eventually she puts it in her mouth too :) She doesn't hold on to it for very long though, she loses interest quick. She's getting so big, she weighed 13 pounds 12 ounces at the doctor today, and is already 25 inches long!
This weekend we're going to relax around the house and try to finish Payton's room. We still need to put her letters up, and move the rocking chair up there. I will definitely post pics when it's all finished! Hopefully this weather will start to act like it's summer and I'll be able to take her on a walk or something... she's sitting up in the big girl part of her stroller now, not the carseat!
Thank you again for all the positive thoughts and encouragement, we are blessed to have such caring friends and family :) Have a good weekend!
Love,
Kyle, Jenna and Payton
What a trooper she looks very content while going through all this. We are so anxious to know how the meds are working probably no more than her mamma and daddy. Payton Marie is so lucky to have you as her parents. We want to come down as soon as you get her on a schedule with her meds and dr. appointments. Love you 3 GGB&GGP Book (I'm #1 tee hee)
ReplyDeleteYou guys make parenting look so easy. I'm glad to see the family on a great start...except for the hemangioma part. Keep up the good work.
ReplyDeleteEnjoy your peaceful weekend.
It's amazing how children just troop right on through these things. They do far better during the actual process then we do watching them go through it. Connor and I spent lots of time together with him going through a battery of tests at the hospital and various labs. He was always so bubbly while my stomach churned and churned. She looks like she was having an amused time.
ReplyDeleteGlad to hear the ladybug theme was such a hit :o) The stimulation from her little environment is going to make for one super, smart little girl. Just like her mama (OK, Kyle can have some credit too).
Keep it up super mom! Love you!
Hi! I have tried 4 times to post a comment, and couldn't get into my Google account. Hope this time it works!!. Our PC has been in the shop, (Darn those FWD'S, another Virus) Anyway glad to get caught up on Paytons treatments. She is a happy littl baby and has full "confidence" in her parents. Our prayers are sent with this note,for her to get better, and for you and Kyle. Takes a lot to be a Mommie and Daddy and looks like you are doing just fine. Love you lots, Nana and Papa C
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